Support & Information Service – Service User Guide
An acquired brain injury (ABI) can have a huge impact on the life of the person with the ABI and their family.  We are here to help you find the information you need to live your life after ABI.  This is a free service.

At the moment the service is available to people living in or near to:   Horsham, Crawley, Haywards Heath, Burgess Hill, Hassocks, Henfield, Steyning, Shoreham-by-Sea and Worthing.

Who can use the service?

The service is for people of 18 years and over, resident in West Sussex and living with an Acquired Brain Injury (ABI).  This can be the person with an ABI or a person caring for someone that does.

How can the service help?

  • It can help you understand more about the ABI, symptoms that can occur and the impact they may be having on the person and those around them.
  • It can make sure you get support from specialist organisations to help with things like benefits, housing, your general health, legal matters, social care and anything else that might be helpful to you.
  • It can support you to develop ways of coping with the ABI and, for example, managing better day to day and becoming more confident and independent.

 

What will happen when you talk to the Support & Information worker?

Our support worker will have a detailed discussion with you about your situation and needs.  This might be by phone or they may arrange to meet with you.

They will then suggest options for providing support and agree with you what might help you the most.  Examples of this might include:

  • Providing you with names and contact details of organisations that provide specific help relevant to your circumstances.  You will then make contact with them directly.
  • Assisting you to make contact, either introducing you through a phone call or, on occasion, accompanying you to a meeting to help in describing your particular issues.
  • Making regular contact with you by phone for a few weeks to see how you’re getting on and whether any more support is needed.
  • Support you in finding transport to appointments related to your ABI

 

 

How long does the support last for?

This depends very much on your particular needs and what specific help you’ve accessed with our support.

We will stop making regular contact if you’ve agreed with your Support & Information worker that things have improved enough for the time being.

You are welcome to contact the service for more help at a later date if your circumstances change or things seem difficult again.

What can’t you help me with?

If we’ve helped you to access a Support Worker or Personal Assistant it is unlikely that we will continue to visit you.

Our staff and volunteers are not able to provide you with lifts in their own cars.

What plans do we have for the future?

We hope to raise enough funds soon to employ a second Support & Information worker to cover the western side of the county.  This will include Littlehampton, Bognor Regis, Chichester and Chichester District.  We’re very sorry, but we can’t provide one-to-one support in those areas until then.

We are planning to run ‘Drop-In’ sessions very soon where people living with ABI can go to ask for help, for example with any mail or bills you’re not sure about or to find out more about specific support organisations.  More news soon!

How do I get in touch?                                                                                                                                                                                            Just phone us or send an email, using the contact details below.  Our staff work part time hours so do please leave a message if the phone goes to voicemail.  We’ll call you back as soon as we can.

Please call us on 07938 858153 or email info@headwaywestsussex.org.uk.